Together in SMA

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Together in SMA Together in SMA is a place for education and community support. Thank you for your interest in Together in SMA on Facebook! audiences only.

Your doctor is always your best source of information; please don’t take any conversations here as medical advice. Together in SMA, brought to you by Biogen, offers life hacks, tips, and motivational stories for patients and families living with spinal muscular atrophy (SMA). Together in SMA was created to educate and support the SMA community in different aspects of their life. We are looking for

ward to connecting with and hearing from you. Terms of Use:
We hope this page serves as a resource for those affected by spinal muscular atrophy (SMA) who want to learn more about SMA, engage with others, and find resources available on TogetherinSMA.com. Our community managers will work to answer questions and address comments in a timely manner, but because we exist in a regulated environment, there may be a delay in when your comment appears on the page, as well as responses to questions. All users must comply with Facebook's Terms of Use and our Community Guidelines. This page also adheres to Biogen’s Terms of Use: https://www.biogen.com/en_us/terms-conditions.html?ID=5452. Comments that violate these Terms of Use will be taken down immediately. Please note that this page is intended for users 13 years old and over and U.S. Biogen does not review, endorse or in any way control the content of other Facebook profiles shared from this page. Biogen is not responsible for the accuracy, communication practices or content from all non-Biogen sources. Tell us what you would like to see! If you have any questions or comments, feel free to share your thoughts by commenting on our posts. Please check often for updates, as we reserve the right to change our Community Guidelines at any time. Community Guidelines

1. We encourage users who visit the page to have relevant and helpful conversations about spinal muscular atrophy (SMA). However, any comments or conversations that discuss products, medical devices or other clinical conditions will be removed from the page. For the protection of your privacy, please do not provide any personal information on our page.

2. Our page is not intended to discuss safety issues or report side effects associated with Biogen treatments, or any other treatments. Should you post about a product or adverse event on the Together in SMA page, Biogen may need to contact you or your healthcare provider to find out more information. In addition, if you experience a side effect while using a Biogen product, you are encouraged to report it to the FDA. To do so, visit http://www.fda.gov/medwatch.

3. Please do not include specific names of healthcare providers, SMA treatment centers, or hospitals, as these comments will be removed.

4. Be courteous and respectful. Any material considered defamatory or hostile will be removed immediately. Additionally, all comments containing spam will be removed from the page.

5. Please don't use our page as a place to promote your product or pitch your services. We reserve the right to delete any links to personal products or services that don’t relate to the mission or purpose of the Together in SMA page.

6. For any questions about sponsorships, scholarships, employment, or any other solicitation for services, please refer to Biogen.com rather than posting on this page.

7. We hope that this page serves as a resource, but do not use information on this page to replace conversations with your doctor. Biogen assumes no responsibility for any user content posted on the page. Do not take the page, or any community comments, as medical advice. Your doctor is always your best source of information when it comes to your health. Likewise, do not post any medical advice or opinions on the page.

8. All comments containing information about clinical trials that you or someone you care for has participated in will be removed from the page.

9. For complete information on Biogen guidelines, policies and terms of use, please click the links below:

Community Guidelines: https://www.biogen.com/en_us/community-guidelines.html

Privacy Policy: https://www.biogen.com/en_us/privacy-policy.html
Terms of Use: https://www.biogen.com/en_us/terms-conditions.html

To review Facebook’s Community Standards, please visit the following webpage: https://www.facebook.com/communitystandards

For questions and/or comments about this page, please visit our contact information page to get in touch with us: https://www.biogen.com/en_us/about-biogen/contact.html

For additional information about Together in SMA, visit TogetherinSMA.com

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Our Story

Together in SMA, brought to you by Biogen, offers life hacks, tips, and motivational stories for patients and families living with spinal muscular atrophy (SMA). Together in SMA was created to educate and support the SMA community in different aspects of their life. Thank you for your interest in Together in SMA on Facebook! We are looking forward to connecting with and hearing from you. Terms of Use: We hope this page serves as a resource for those affected by spinal muscular atrophy (SMA) who want to learn more about SMA, engage with others, and find resources available on TogetherinSMA.com. Our community managers will work to answer questions and address comments in a timely manner, but because we exist in a regulated environment, there may be a delay in when your comment appears on the page, as well as responses to questions. All users must comply with Facebook's Terms of Use and our Community Guidelines. This page also adheres to Biogen’s Terms of Use: https://www.biogen.com/en_us/terms-conditions.html?ID=5452. Comments that violate these Terms of Use will be taken down immediately. Please note that this page is intended for users 13 years old and over and U.S. audiences only. Biogen does not review, endorse or in any way control the content of other Facebook profiles shared from this page. Biogen is not responsible for the accuracy, communication practices or content from all non-Biogen sources. Tell us what you would like to see! If you have any questions or comments, feel free to share your thoughts by commenting on our posts. Please check often for updates, as we reserve the right to change our Community Guidelines at any time. Community Guidelines 1. We encourage users who visit the page to have relevant and helpful conversations about spinal muscular atrophy (SMA). However, any comments or conversations that discuss products, medical devices or other clinical conditions will be removed from the page. For the protection of your privacy, please do not provide any personal information on our page. 2. Our page is not intended to discuss safety issues or report side effects associated with Biogen treatments, or any other treatments. Should you post about a product or adverse event on the Together in SMA page, Biogen may need to contact you or your healthcare provider to find out more information. In addition, if you experience a side effect while using a Biogen product, you are encouraged to report it to the FDA. To do so, visit http://www.fda.gov/medwatch. 3. Please do not include specific names of healthcare providers, SMA treatment centers, or hospitals, as these comments will be removed. 4. Be courteous and respectful. Any material considered defamatory or hostile will be removed immediately. Additionally, all comments containing spam will be removed from the page. 5. Please don't use our page as a place to promote your product or pitch your services. We reserve the right to delete any links to personal products or services that don’t relate to the mission or purpose of the Together in SMA page. 6. For any questions about sponsorships, scholarships, employment, or any other solicitation for services, please refer to Biogen.com rather than posting on this page. 7. We hope that this page serves as a resource, but do not use information on this page to replace conversations with your doctor. Biogen assumes no responsibility for any user content posted on the page. Do not take the page, or any community comments, as medical advice. Your doctor is always your best source of information when it comes to your health. Likewise, do not post any medical advice or opinions on the page. 8. All comments containing information about clinical trials that you or someone you care for has participated in will be removed from the page. 9. For complete information on Biogen guidelines, policies and terms of use, please click the links below: Community Guidelines: https://www.biogen.com/en_us/community-guidelines.html Privacy Policy: https://www.biogen.com/en_us/privacy-policy.html Terms of Use: https://www.biogen.com/en_us/terms-conditions.html To review Facebook’s Community Standards, please visit the following webpage: https://www.facebook.com/communitystandards For questions and/or comments about this page, please visit our contact information page to get in touch with us: https://www.biogen.com/en_us/about-biogen/contact.html For additional information about Together in SMA, visit TogetherinSMA.com