UCB Biopharma

Name: UCB Biopharma
Address: Allée de la recherche 60, Brussels, 1070, BE
Telephone: +3225599999

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We’re , a global biopharmaceutical company. We believe everyone deserves to live their best life.
💙 Inspired by patients 🔬 Driven by science

12/10/2026

“I’m Allison. I love the color pink. I love college football. I love my dog, but I also have myasthenia gravis.”

Diagnosed with (MG) at just five years old, Allison has never known life without MG. But MG is only one part of who she is.

Behind the everyday moments are unseen challenges, such as managing her energy or using breathing support at night.

Today Allison uses her experiences to advocate for others living with the condition, as part of the patient organization group, Myasthenia Gravis Association.

Learn more about Allison’s inspiring story at Faces of MG. https://www.ucb.com/solutions/diseases/myasthenia-gravis/faces-of-MG?utm_id=Faces+of+MG&utm_source=Meta&utm_campaign=Boosted+Post+1

18/09/2026

Ahead of tomorrow, we are reflecting on the impact mitochondrial diseases have on people living with them.

Kamiron lives with , an ultra-rare, mitochondrial disorder, which affects his muscles and breathing. He experienced a complex journey to diagnosis from a young age, with visits to many different specialist healthcare professionals. At 15, he finally received a diagnosis of TK2d, which was confirmed by a genetic test.

Now, Kamiron works as a disability consultant, using his experiences to support and advocate for others. 💙

16/09/2026

The exhibition is now yours. 💙

Visit the exhibition online to dive into the minds of the epilepsy community and see their condition through the lens of art 👉 https://bit.ly/3VgTlqp

14/09/2026

It is , an important time for those impacted by mitochondrial diseases, like .

Hear from our VP Asset Head Rare and Ultra-Rare Diseases, Fabian Somers, as he shares the importance of genetic testing in TK2d.

08/09/2026

“Alex was a normal, happy, healthy little boy… or so we thought.”

Every family’s journey to a rare disease diagnosis is different, but many are shaped by uncertainty and the search for answers after noticing that something is wrong. For many families living with TK2d, an ultra-rare genetic mitochondrial disease, this diagnostic journey is all too familiar.

Hear from Vicky and Ruy on their experience that led them to their son’s diagnosis of TK2d. It changed their lives.

Learn more about and the importance of early diagnosis at
🔗 https://www.ucb.com/solutions/diseases/tk2d.

05/09/2026

Introducing .

Created with artists living with epilepsy, this exhibition brings personal experiences to life through art. Through their work, the artists share powerful perspectives on the emotions, everyday realities, and hidden experiences that shape life with epilepsy.

01/09/2026

Living with can bring significant challenges to those impacted, affecting their physical ability day-to-day, their independence and their mental wellbeing.

To understand the day-to-day challenges those living with TK2d face and those who care for them, we conducted an online survey-based Assessment of TK2d Patient Perspectives study.

Thank you to all of those who took part in the study – your lived experiences are incredibly valuable, and we hope the results will help share care in the future.

Learn more about the study and the results at 👉 https://journals.sagepub.com/doi/full/10.1177/26330040261469197

24/08/2026

We're counting down to the 16th European Epilepsy Congress in Athens, where we'll unveil .

Through art and storytelling, this global initiative explores epilepsy in a new way — inviting people to pause, reflect, and connect with experiences they may never have considered before.

Stay tuned!

18/08/2026

Every experience of epilepsy is unique.

Some moments are visible. Many are not. They are carried in silence, felt in uncertainty, and lived in ways that are often difficult to explain in words.

This September, we're exploring those lived experiences through a series of artworks created by people living with epilepsy, offering a powerful new perspective on what epilepsy can feel like.
Stay tuned. 💙

02/07/2026

To raise awareness of MG and inspire others to self-advocate, Alisa shares her experiences living with MG, including the development of her symptoms, her misdiagnoses, and her unfortunate myasthenic crisis.

Read the full story featured in this UCB sponsored RareRevolution article https://rarerevolutionmagazine.com/beyond-the-surface-the-invisible-impact-of-myasthenia-gravis/

Adresse

Allée De La Recherche 60
Brussels
1070

Téléphone

+3225599999

Site Web

https://www.ucb.com/

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