04/06/2026
For many families, life with or is about so much more than seizures. It’s the developmental challenges, cognitive and behavioral difficulties, disrupted sleep, and the constant changing care that shape each day.
With June marking Dravet Syndrome Awareness Month and CDKL5 Deficiency Disorder (CDD) Awareness Month, it’s an important time to listen to people living with developmental and epileptic encephalopathies (DEEs) and understand the challenges the diseases present across the care journey