Comunicação Visual Obras

29/08/2026

28/08/2026

My name is Deivid Fernandes da Silva, and I am contacting you from Brazil regarding the CLN6 research programs in Europe, specifically the natural history studies and clinical evaluations led by the University Medical Center Hamburg-Eppendorf (UKE).My 7-year-old daughter, Beatriz de lima Fernandes da Silva, has a confirmed genetic diagnosis of CLN6 Batten disease. Currently, she has significant motor impairment and can no longer walk by herself. However, she has no vision loss.We would like to register her in the international patient registry and find out if there are any active clinical arms, observational studies, or investigator-led protocols in Germany that we could apply for.We have all medical reports ready to be translated and shared by her attending geneticist in Brazil.Thank you very much for your time, support, and dedication. Hearing back from you is of utmost importance to us.Best regards,

UC San Diego / UCSD

Uniklinik Hamburg-Eppendorf

07/07/2026

24/06/2026

Valéria Ribeiro de Lima