05/29/2026
Earlier this week, our Senior Advisor, Interdisciplinary Research and Programs, Anita Charters, moderated a panel at the Annual Health Summit titled “Genetic Privacy & Security: Intersecting Public and Private Information Ecosystems.”
The panel explored the "social life" of genomic data as it travels between public health authorities, private labs and direct-to-consumer apps.
Thank you to our panelists Dr. Samantha Pollard, Nilou Noursadeghi and Dr. Peter Chow-White for exploring how we can balance data sharing for public benefit with responsible governance and highlighting the vital role of patient-oriented research in advancing data practices.