Epicare ERN

02/06/2026

🍂 Registration now open: EPNS Research Meeting 16-17 October 2026, Thessaloniki, Greece

"Join us in Thessaloniki for the unique European Paediatric Neurology Society (EPNS) Research Meeting 2026, featuring plenary lectures from leading experts and interactive sessions, including two break-out sessions with five parallel working groups covering Autoimmune & Infectious Diseases, Developmental Neurology & Neurogenetics, Epilepsy, Fetal & Neonatal Neurology, Leukodystrophies, Movement Disorders, Neurometabolic, and Neuromuscular disorders."

Registration is now Open on a 1st come/1st served basis to paediatric neurology researchers at all career stages—from trainees and PhD students to senior experts—this meeting offers an excellent opportunity for collaboration and discussion, with the potential to develop and strengthen future research collaborations.

For full details: https://www.epns.info/epns-research-meeting-2026/
Any questions: [email protected]

EPNS - European Paediatric Neurology Society

REGISTRATION IS OPEN first come/ first served General information The EPNS has been organising Research Meetings since 2008. With an aim to enhance research in Paediatric Neurology, the meeting brings together leaders in the field, active researchers and young fellows who are interested to join or t...

01/06/2026

We invite you to review our Calls for Collaborative Genetic Research on the specific webpage we have at EpiCARE website 💫

29/05/2026

😊Happy Friday!

Today, we invite you to explore our PCDH19 / PACS2-related DEE Patient Journeys, available on the EpiCARE website:
https://epi-care.eu/patient-and-caregiver-leaflets/

Each leaflet includes information on:
• First symptoms
• Diagnosis
• Treatment
• Follow-up
• Adult follow-up

PCDH19
Available in: English (EN) / Croatian (HR) / Portuguese (PT)

PACS2-related DEE
Available in: English (EN) / Croatian (HR)

Patient Leaflets and journeys: read and download ressources from our patients representatives : leaflets and patient's journeys.

28/05/2026

🧠 The European Academy of Neurology Congress 2026 Presidential Symposium will showcase an exceptional series of Named Lectures, honouring scientific excellence and leadership across key areas of neurology.

The programme brings together internationally recognised experts delivering prestigious lectures, including the Anita Harding Award Lecture, the Moritz Romberg Award Lecture, the Camillo Golgi Award Lecture, and the Charles‑Édouard Brown‑Séquard Award Lecture, covering topics from childhood movement disorders and neurogenetics to neuro-oncology and neuromodulation. European Academy of Neurology

Register now! www.ean.org/congress2026

27/05/2026

Epilepsy is more than having seizures. Behavioral and cognitive comorbidities are very common and sometimes affect everyday life and functioning more than seizures. ⚡🤝 https://epi-care.eu/working-group/wg5-neuropsychology

📹 Christoph Helmstaedter: https://www.youtube.com/watch?v=fjNQEsjZrkg
📹Andrea Palacio: https://www.youtube.com/watch?v=r1FeDXnYMv8

26/05/2026

Last week (21-23 May, 2026), it took place in Warsaw The International Conference on Tuberous Sclerosis Complex and other Neurocutaneous Conditions. The conference was under the patronage of European Reference Network for Rare and Complex Epilepsies EPICARE.

🌍 About 200 participants from Europe, USA and Asia attended the Conference. Among them, members of EpiCARE, Rima Nabbout, Lieven Lagae, Katarzyna Kotulska, Sergiusz Jozwiak, and 8 recipients of the Manuel Gomez Award of Tuberous Sclerosis Alliance (an American patients’ organisation).

13/05/2026

Save the date: May 28 at 5:00 PM (CET) and register now for this free online session. We are pleased to welcome:
🔹 Gaetan Lesca: Member of the EpiCARE Executive Committee – Hospices Civils de Lyon - HCL, France
🔹 Giulia Barcia: INEM - Institut Necker Enfants Malades, France

They will present:
🧬 “After a Genetic Diagnosis: What Should Genetic Counselling Include”

An insightful session exploring the key aspects of genetic counselling following a genetic diagnosis.

💻 Online & free registration
https://us06web.zoom.us/webinar/register/WN_f0sadl1ORCaOLUTDXUI0kw?utm_source=brevo&utm_campaign=EpiCARE%20Newsletter%20-%20April&utm_medium=email #/registration

13/05/2026

📣Today, May 13th is SLC13A5 Epilepsy International Awareness Day!💜 We would like to take this opportunity to remind you that EpiCARE has the SLC13A5 leaflet available in these two versions: English (EN) / Croatian (HR).

https://epi-care.eu/patient-and-caregiver-leaflets/

11/05/2026

In less than a year, the international paediatric neurology community will come together in Barcelona, Spain, for the 17th EPNS Congress from 6–10 April 2027. Under the theme “From Technological Complexity to Patient Centered Care”, the congress will create a forward-looking space for scientific exchange, new perspectives and international collaboration.
💫 Save the date!

Barcelona welcomes you as the host city of the EPNS Congress 2027. Recognized as a global hub for scientific Exchange, over the past decade, it has emerged as a leading city in neuroscience research, driven by a vibrant academic community, world-class hospitals, and a strong commitment to paediatric...

08/05/2026

The 7th Dianalund International Conference on Epilepsy, led by Elena Gardella, Guido Rubboli, and Rikke Møller, is currently taking place in Køge (Denmark). A unique opportunity to connect clinicians, researchers, patients’ perspectives, and industry around the shared goal of improving outcomes in DEEs.

🌍 243 participants from 23 countries
🎤 57 speakers
🧠 Patient, clinical, basic science, and pharma perspectives

A truly inspiring event bringing together an amazing international DEE community! Thank you very much for this fantastic initiative.

📸 Rikke Møller