Orphan Reach

28/02/2022

Today is , a day to raise awareness for the 7000+ rare diseases that affect approximately 300 million people worldwide.

We are dedicated to raising awareness and making a difference to the rare disease community today and every day, through solely focusing in this area of vast unmet medical need.

The end goal of our efforts at Orphan Reach is to deliver life changing treatments to those living with rare diseases, a goal that is a driving force in all that we do and strive to accomplish. The rare disease community underpins everything we do and with this we understand there is a desperate need for more awareness, more progression, more compassion and more available treatments.

We are honoured to be a part of this community and to continue with our dedication to global clinical development for rare diseases.

Click the link to read what our team had to say about working within the rare disease space:
https://orphan-reach.com/resources/rare-disease-center-insights/

18/02/2022

With fast approaching, we are proud to to honour the rare communities we serve through our work.

You can learn how to get involved with the day by visiting the National Organization for Rare Disorders, Inc. (NORD) website: https://lnkd.in/dvd7nDBY

22/12/2021

2021 has been a year of united action by communities, a year when new legislation has been brought forth, and a year when healthcare started to change.

As 2021 comes to a close, we’d like to take the time to think back on the year it has been. Not dwell on the ongoing scientific details of Covid-19 itself, but to appreciate some of the many things we have achieved together because of, or despite, the pressures of the pandemic. We truly believe that this year is one we can all be proud of for the way we have supported each other during hardship, built on successes, and made changes needed to achieve even more in 2022.

A massive thank you to all our stakeholders for their ongoing support and collaboration this year.

To download "2021: A year in review" please click the link: https://lnkd.in/ePSx9nt5

11/11/2021

We are delighted to be exhibiting at World Orphan Drug Congress in Barcelona next week! You can visit us at booth #19 to meet with our experts, and to learn all about our exciting launch as Emmes' Rare Disease Center.

You can also speak with us at one of our interactive round tables taking place during the conference:
1) Delivering successful rare disease trials in paediatric populations
2) How can CROs ensure that the patient is at the centre of rare disease clinical trials?

09/11/2021

: We are excited to announce the launch of Orphan Reach as Emmes' Rare Disease Center! This new center will incorporate Emmes’ world class reputation in public health research across the public sector and biopharmaceutical industry, with the expertise of Orphan Reach. This global specialty center is dedicated to the advancement of rare disease research by providing specialised clinical trial design and ex*****on capabilities.

Learn more: https://lnkd.in/ef5WP7bT

22/09/2021

As part of World Mitochondrial Disease Week please view this short animation which gives a simple overview of

30/06/2021

Today is the day! We are excited to welcome you to our webinar later today for what is sure to be a thought provoking session on utilising India as part of your clinical trial.

There is still time to register if you would like to attend!

To register please visit: https://lnkd.in/guxHFi3

04/06/2021

We are excited to share with you the third episode of our Charity Spotlight Series. In this episode we interview Jessica Doyle, the Head of Service Delivery at Metabolic Support UK.

Jess joins us to discuss the charity’s ten-year strategy that has just launched, their 40th anniversary plans, their experience with clinical research and how they have navigated their way through the past year.

A big thank you to Jessica Doyle for her time and insight. We hope this interview raises valuable awareness for the the Metabolic Support UK community.

Please click the link below to view the interview!

https://orphan-reach.com/charity-spotlight-series/

17/05/2021

We are delighted to confirm the news that Orphan Reach has been acquired by Emmes, a global, full-service CRO dedicated to supporting the advancement of public health and biopharmaceutical innovation.

Orphan Reach CEO Thomas Ogorka commented: “Orphan Reach and Emmes share a passion for the research we do, a dedication to the patients in our trials, and successful, long-term collaborations with our clients. I look forward to this new chapter in our history and to further extending our leadership in rare and orphan disease research that leads to new treatment options for these patients.”

The full press release can be read here: https://emmes.com/content/emmes-announces-acquisition-uk-based-orphan-reach

11/05/2021

Register now for our webinar 'Unlocking India for rare disease clinical trials', where we will be discussing the key benefits and considerations to take into account when utilising India as a contributing country when recruiting patients for rare disease trials.

LIVE Wednesday 30th June 2021!
https://bit.ly/3eQuOQn

10/05/2021

There is a simple thing that can really help support good mental health… nature.🌱

Today marks the beginning of Mental Health Awareness Week and see’s the Mental Health Foundation embark on a campaign to bring us all closer to nature.

To learn more about the campaign, visit the Mental Health Foundation’s website: mentalhealth.org.uk/mhaw

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29/04/2021

We are delighted to share with you the second episode of our Charity Spotlight Series. This episode sees our Marketing Manager, Georgia Rose interview Liz Curtis the CEO and Founder of The Lily Foundation, which is the UK's leading Mitochondrial Disease charity.

A massive thank you to Liz Curtis for her time and for sharing such valuable insight. Please click the link below to watch the full interview and to learn more about The Lily Foundation:
https://orphan-reach.com/charity-spotlight-series/

Visit the post for more.