Odylia Therapeutics

12/04/2024

Double the impact Odylia can make in 2025 by donating $50 today. Together we can accelerate treatments for rare disease patients.

https://form-renderer-app.donorperfect.io/give/odylia-therapeutics/general-donation-copy

11/26/2024

For those planning to order holiday cards or personalized gifts from Minted this season, use the code FUNDRAISEODYLIA for 20% off your order and Minted will also donate 15% of proceeds to Odylia.

11/21/2024

Getting together with others over the holiday? Remind them to bring unwanted foreign currency with them. Collect it and send it to Odylia to help advance treatments for rare disease. Find out more here:
https://odylia.org/get-involved/changeforcure/

11/15/2024

For those planning to order holiday cards or personalized gifts from Minted this season, use the code FUNDRAISEODYLIA for 20% off your order and Minted will also donate 15% of proceeds to Odylia.

www.minted.com

10/24/2024

Turn loose change into treatments for rare diseases. Our program Change for a Cure turns foreign coins and cash into donations for Odylia. If you have loose change lying around from a trip abroad, consider sending it to Odylia, to be turned into a donation to further our mission of accelerating therapeutic development for rare disease.

10/04/2024

Odylia Therapeutics has a new address! Feel free to send any inquires or donations here. Thank you for your support.

odylia.org

07/02/2024

Odylia is excited to announce the launch of the Catalyst Campaign. Our RPGRIP1 Gene Therapy program is moving towards clinical trials but we need YOUR support to make it happen. Please help us keep this program on track and donate to make a difference for patients with vision loss due to RPGRIP1 mutations’




https://form-renderer-app.donorperfect.io/give/odylia-therapeutics/catalyst-campaign

06/26/2024

The next installment in our Brydge Solutions videos is out now! This video explains what a drug repurposing screen is and how they can be beneficial for finding treatments for rare diseases.

Odylia believes in empowering the rare disease community through access to resources that will assist in their drug development journey. This series addresse...

06/04/2024

Hear the latest news about the RPGRIP1 Gene Therapy Program and have your questions answered by our scientific staff.



https://interland3.donorperfect.net/weblink/weblink.aspx?name=E362476&id=11

05/21/2024

Foundation Fighting Blindness

03/13/2024

The Bespoke Gene Therapy Consortium (BGTC) published version 1.0 of the regulatory playbook that serves as a roadmap to guide non-profits, patient foundations, academic research labs, and small biotechs to develop adeno-associated virus (AAV) gene therapies for rare diseases. This valuable resource serves as a guide to support IND submissions for first-in-human clinical trials. The playbook can be found here.

https://fnih.org/wp-content/uploads/2024/02/BGTC-Regulatory-Playbook-preliminary-FINAL-FOR-RELEASE_20240205.pdf

03/06/2024

Learn more at: odylia.org