Newborn Screening Translational Research Network (NBSTRN)

Newborn Screening Translational Research Network (NBSTRN) Goals of the NBSTRN:

The basic goals of our work are established by the NICHD contract.

The Newborn Screening Translational Research Network (NBSTRN) is funded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), National Institutes of Health (NIH). For conditions in newborn screening, we will develop a system in which long-term follow-up and outcome data can be collected by providers and be used for several purposes including developing the

clinical history of the treated disease, some of which can be 1) made available in some form to newborn screening programs as a means of evaluating the success of their screening programs and 2) the basis on which next generation treatments might be evaluated. For conditions that are considered candidates for NBS we will develop a system in which the clinical histories can be defined and in which clinical trials can be pursued. This program is aligned with the research and investigational interests of the NIH and is focused on achieving many of the activities discussed above. Among the initial activities of the NBSTRN will be to develop resources that facilitate the ability of researchers to become involved in this important area.

Address

7101 Wisconsin Avenue
Bethesda, MD
20814

Telephone

+13017189603

Website

Alerts

Be the first to know and let us send you an email when Newborn Screening Translational Research Network (NBSTRN) posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Newborn Screening Translational Research Network (NBSTRN):

Shortcuts

Share

Category