Alexion Pharmaceuticals

Alexion Pharmaceuticals Alexion, AstraZeneca Rare Disease is focused on pioneering new possibilities for the rare disease community. Community Guidelines: https://bit.ly/39x9gqy

We are driven by a mission to change what it means to live with a rare disease.

(NF) is a rare, genetic condition involving the development of nonmalignant tumours that may affect the brain, spinal ...
05/30/2026

(NF) is a rare, genetic condition involving the development of nonmalignant tumours that may affect the brain, spinal cord and nerves. As the most common type of NF, neurofibromatosis type 1 (NF1) affects about 1 in 3,000 people worldwide.

Light chain (AL) , also referred to as AL, is a rare, systemic and progressive disorder caused by defective plasma cell...
05/29/2026

Light chain (AL) , also referred to as AL, is a rare, systemic and progressive disorder caused by defective plasma cells in the bone marrow.

05/27/2026

Amit has lived most of his life with visible tumours called plexiform neurofibromas (PN) due to NF1 – a rare, progressive and lifelong condition. PN, which can cause a range of physical, social, emotional and mental health problems, left him feeling isolated from classmates and colleagues.

Today, Amit is a powerful voice for the NF1 community, sharing his journey to self-acceptance around the globe.

In recognition of , listen to Amit’s story and how he’s learned to embrace living with this .

We’re committed to advancing the understanding of paroxysmal nocturnal haemoglobinuria (PNH) and showing our support for...
05/22/2026

We’re committed to advancing the understanding of paroxysmal nocturnal haemoglobinuria (PNH) and showing our support for the community. Learn about this rare, chronic, progressive and potentially life-threatening blood disorder below.

05/19/2026

Introducing Tina’s Big Trip, the newest title in our Inspired By series. This story celebrates resilience, curiosity and the rare disease community’s everyday courage. Download your copy [link: http://www.tinasbigtrip.com/].

Immunoglobulin A nephropathy ( ) is a rare, inflammatory disease of the kidneys that can lead to chronic kidney disease ...
05/14/2026

Immunoglobulin A nephropathy ( ) is a rare, inflammatory disease of the kidneys that can lead to chronic kidney disease and progress to end-stage kidney disease. IgAN begins when the body develops abnormal IgA proteins resulting in immune complexes that are deposited in the kidneys. That ultimately leads to inflammation and damage in the kidneys, and over time, impacts proper kidney function. This , take some time to learn more about this rare disease.

IgA Nephropathy Awareness Day is a powerful reminder of the urgent need for greater awareness of immunoglobulin A nephro...
05/14/2026

IgA Nephropathy Awareness Day is a powerful reminder of the urgent need for greater awareness of immunoglobulin A nephropathy ( ) and understanding of the profound and lasting burden on people living with this rare kidney disease.

Every day, we remain deeply committed to advancing research and collaborating with patients, caregivers, clinicians and advocates to support meaningful progress for the IgAN community.

(NF) is a rare, progressive genetic condition, with the most common type being neurofibromatosis type 1 (NF1). NF1 can...
05/05/2026

(NF) is a rare, progressive genetic condition, with the most common type being neurofibromatosis type 1 (NF1). NF1 can impact every organ system and be involved in the development of non-malignant tumours that may affect the brain, spinal cord and nerves.

is a powerful reminder of the strength and resilience of those living with .This May—and every month—we’re dedicated ...
05/01/2026

is a powerful reminder of the strength and resilience of those living with .

This May—and every month—we’re dedicated to raising awareness and deepening understanding of this rare, progressive condition to advance outcomes for the community.

Did you know up to 50% of people with type 1 (NF1) may develop nonmalignant tumours on the nerve sheaths called plexif...
04/21/2026

Did you know up to 50% of people with type 1 (NF1) may develop nonmalignant tumours on the nerve sheaths called plexiform neurofibromas (PN)? Some PN can grow fast and become large, which can progressively interfere with normal physical functions.

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121 Seaport Boulevard
Boston, MA
02210

Telephone

+14752302596

Website

https://alexion.com/Documents/Alexion-Community-Guidelines, https://www.linkedin.com/company/alexio

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