Avery Biomedical Devices, Inc.

08/06/2026

08/03/2026

8 Weeks Until CCHS Day!

The countdown is on! In just eight weeks, our small but mighty community will come together to raise awareness, celebrate our warriors, and cast a light on Congenital Central Hypoventilation Syndrome. Mark your calendars for September 26 and stay tuned for ways you can make a difference.

Don't forget to order your 2026 CCHS Day merchandise: https://shops.cchsnetwork.org/collections/cchs-day

07/31/2026

Save the Date: CCHS Day is September 26!

📅 Save the Date: CCHS Day is September 26!

We are two months away from International CCHS Day, a time to raise awareness, celebrate our incredible community, and advocate for individuals living with Congenital Central Hypoventilation Syndrome (CCHS). Mark your calendars and get ready to shine a light on CCHS. Don’t forget to order your CCHS Day T-shirt at https://shops.cchsnetwork.org/collections/cchs-day.

07/21/2026

Researcher and Clinician Webinar Alert!

Friday, Sept. 25, 12:00 pm ET

Biorepositories, Biobanking, and How to Share Data to Advance Research in Spinal Cord Injury

Learn how to use existing resources to strengthen your own research and contribute to the future of SCI science.

Register Here: https://bit.ly/3OdXIzp

07/20/2026

Auguri di cuore a tutti i ragazzi, alle famiglie e agli organizzatori!

Sending our best wishes to our friends at A.I.S.I.C.C. (the Italian Association for Congenital Central Hypoventilation Syndrome) as they kick off this year's Open Sky Adventure Camp!

This incredible program brings together young people living with CCHS for a week of adventure, connection, and personal growth in a safe and supportive environment. Through outdoor experiences and community, participants are encouraged to build confidence, independence, and lifelong friendships while discovering that CCHS does not define what is possible.

We wish all of the campers, families, volunteers, medical staff, and organizers a memorable week filled with discoveries, laughter, and new connections. Thank you to A.I.S.I.C.C. for your continued dedication to the CCHS community. Have an amazing camp!

07/04/2026

From all of us at Avery Biomedical Devices, we proudly celebrate 250 years of American independence.

Today we honor the courage and sacrifice of our veterans and active service members whose dedication protects the freedoms we enjoy every day.

Wishing everyone a safe and meaningful 4th of July.

06/29/2026

Our DME Grant helps individuals with CCHS access essential durable medical equipment when insurance coverage falls short, providing up to $5,000 per year. Visit our website to learn more about eligibility and the application process at https://cchsnetwork.org/cchs-durable-medical-equipment-grant-application/.

06/02/2026

June is .

Myasthenia gravis is a rare disease that causes fluctuating fatigue and weakness in voluntary muscles, like those in the face, neck, throat, diaphragm, and limbs. It happens when the body’s immune system creates antibodies that disrupt communication between nerves and muscles, making it difficult for muscles to contract.

Symptoms may include drooping eyelids, double vision, difficulty speaking or swallowing, and trouble lifting objects. Although there is no cure for , treatments can help relieve symptoms and, in some cases, lead to remission.

To learn more about myasthenia gravis, and how our in the Gregory W. Fulton ALS and Center can help, visit https://bar.rw/myastheniagravis.

(🎨: Barrow Publications)

06/01/2026

June is Myasthenia Gravis Awareness Month 💙

This month, we recognize the strength and resilience of those living with Myasthenia Gravis (MG), a rare neuromuscular disease that affects muscle strength and everyday activities. By raising awareness, supporting research, and sharing stories, we can help improve the lives of those impacted by MG.

Join us in spreading awareness and supporting the MG community throughout June. Together, we can make a difference.