10/21/2026
"A major problem for rare disease research is funding." – Guangping Gao, M.D., UMass Chan Medical School
Noa is one of more than 30 million Americans living with a rare disease.
Fewer than 5% of rare diseases have an FDA-approved treatment. For most families, a diagnosis still arrives with no answer attached — and they wait.
Noa's Story is about what changed, and about the parents, researchers, and advocates who refused to accept that answer.
Our thanks to the Greenwood family for sharing Noa with us, and to the UMass Chan Medical School for the years of work behind this moment.
Watch the full video on our Insights page: https://bit.ly/4z9U5fL