Marinus Pharma

12/13/2024

Genetic testing can help patients receive appropriate clinical management for their specific conditions. Learn more about the benefits of a confirmed genetic diagnosis for refractory seizures.

12/05/2024

Stop by our booth at the American Epilepsy Society Conference to learn more about CDKL5 deficiency disorder and discuss treatment options for those impacted by this rare genetic epilepsy disorder.

11/22/2024

Our team had an incredible experience at the annual Epilepsy Awareness Day at Disneyland! We engaged with epilepsy physicians and patients to raise awareness about the vital needs and services available to the community. Check out the photos!

10/24/2024

Today, we shared topline results from our Phase 3 TrustTSC trial. Read more in our press release: https://www.businesswire.com/news/home/20241024735870/en/Marinus-Pharmaceuticals-Announces-Topline-Results-From-Phase-3-TrustTSC-Trial-of-Oral-Ganaxolone-in-Tuberous-Sclerosis-Complex-and-Commences-Process-to-Explore-Strategic-Alternatives

We sincerely appreciate the patients, investigators, clinical sites and collaborators who supported and participated in this trial.

10/21/2024

At just under a year old, Judith was diagnosed with CDKL5 deficiency disorder, a rare, X-linked DEE characterized by early-onset, refractory seizures and severe global developmental impairment. A special thank you to Medical Stories for bringing Judith’s story to light and promoting awareness of this rare disease. Watch the full episode, which is also airing via the PBS local stations, to learn more.

Kaitlyn, 33, learned that her daughter, Judith, had CDD when she had convulsions shortly after her birth. Along with her epilepsy, Judith, now 11, also has trouble focusing on faces, moving on her own, and speaking with others. Although Kaitlyn initially felt overwhelmed as a new mother, she shares....

10/18/2024

We recently hosted our virtual “PetOberfest” event where employees shared adorable photos of their pets and even brought some furry friends on camera to raise money for Canine Partners for Life! We’re proud to support this incredible organization and its mission to create life-changing partnerships with service and companion dogs, bringing independence and greater quality of life to those they work with, including individuals with epilepsy. Here are some photos!

09/11/2024

Now airing! Step into the lives of Judith and her family as they navigate life with deficiency disorder, showcasing incredible strength and resilience, in a new episode of Medical Stories docuseries airing via the PBS local stations. Stay tuned for more details on how to access the full documentary.

This is "Judith's Story - Trailer" by Marinus Pharmaceuticals on Vimeo, the home for high quality videos and the people who love them.

08/22/2024

Tuberous sclerosis complex (TSC) is a rare genetic disorder caused by mutations in the TSC1 gene or TSC2 gene. Learn more about this condition.

08/16/2024

We were honored to host Carly at our TSC Town Hall, where she shared insights into her life as a caregiver for her son Logan, who is living with TSC. The TSC patient journey is complex, and their story highlighted both the challenges, and the remarkable resilience involved. Thank you for sharing your experiences, which remind us of the importance of our work and inspire us to continue striving for better treatments and support.

08/15/2024

Hosted by the Epilepsy Foundation Eastern PA - EFEPA, Marinus was a proud sponsor of Camp Achieve, a summer camp tailored to the unique needs of kids living with epilepsy. Yesterday, our Marinus team volunteered at the Camp Olympics, a day of team-building and friendly competition with the campers. See the photo!

08/09/2024

We are honored that ZTALMY® has been nominated for the prestigious USA award for Best Product for Rare/Orphan Diseases! This program honors the leading-edge of scientific advances in life sciences. Learn more about this recognition: https://www.prnewswire.com/news-releases/the-galien-foundation-announces-2024-prix-galien-usa-nominees-for-best-biotechnology-product-best-pharmaceutical-product-and-best-product-for-rareorphan-diseases-302218512.html?tc=eml_cleartime

08/01/2024

Marinus is proud to support the TSC Alliance and their mission to improve the lives of people with TSC. This Saturday, we’ll be attending their Transition Workshop, an event designed to help TSC patients and families understand how and when to start preparing for their transition from pediatric to adult clinical care.

This is a great opportunity for the TSC community to engage and learn from local clinicians and support groups. Learn more here:

Ready to navigate adulthood with TSC? Join us for the first in-person 2024 TSC Transition Workshop in Memphis, TN!

🗓 Date: Saturday, August 3, 2024
🕣 Time: 8:30 AM - 5:30 PM
📍Location: Sheraton Memphis Downtown

Don't miss this chance to:
🔹 Learn about medical transition guidelines when moving from pediatric to adult clinical care
🔹 Discover resources and support services available in the area
🔹 Explore employment, higher education and housing options for children after high school
🔹 Get legal insights on guardianship and financial planning
🔹 Network with leading TSC researchers and clinicians
🔹 Connect with other families and individuals in the TSC community

Register for the workshop here: https://ow.ly/AuZk50SAtS7

Check out the workshop agenda: https://ow.ly/tk7L50SAtSb