01/06/2020
Please join the Group page “Benefit for EllaRose”
Save the Date May 24, 2020
Benefit for EllaRose
Family & Friends have decided to coordinate a Benefit for EllaRose.
EllaRose was diagnosed with Tetralogy of Fallot(TOF) at 24 hours after birth. TOF is rare and one in one hundred babies are born with this congenital heart disease (CHD) made up of four heart defects. The main defect of concern with her heart is the pulmonary valve the one that blood flows from the heart to the lungs, it only opens one third of the size, her oxygen levels drop when she cries/her heart rate increases. With that being said she will not be able to be put in daycare for mom to return to work. She must have 100% attention of a caregiver 100% of the day and night. Amanda may or may not be able to return to work once she is released by her doctor. Jacob works construction so if he misses work, he is not paid. The very near future holds open heart surgery with many trips to the doctors in Houston / Lake Charles, healthcare expenses and many unknowns.
We are thinking about doing a Raffle, Sell T-shirts, Jambalaya Cook off and a Silent Auction at the Managan Center in Westlake on Sunday May 24th (Memorial Day Weekend)
If you are interested in helping, selling raffle tickets, donating items for the Silent Auction, simply making a donation or anything. Please contact us ASAP.
An account has been set up at Jeff Davis Bank in the name of “Benefit for EllaRose”
You can contact us by email @ [email protected]
Thank you,
Though she be but little she is FIERCE -Shakespeare
Please Share to help get the word out