Genomics England

03/06/2026

Last week on Behind the Genes, we were joined by midwife Jess and her baby, who are participating in the Generation Study.

Our guests discussed the important role midwives play in supporting families, and how genomics is increasingly becoming part of maternity care and clinical practice.

Listen to the episode to hear more about Jess’s experience and the evolving role of genomics in care on your favourite podcast app or on our website: https://ow.ly/TGUy50Z69SQ

01/06/2026

Join us on Tuesday, 23 June, at the Business Design Centre in London for a full day dedicated to genomic research, innovation and next-generation technologies.

There are limited places available and we will be operating a waiting list once capacity is reached.

Register now while availability lasts: https://genomicsresearchsummit.co.uk/

29/05/2026

Genes, Brains, and Breakthroughs, a new public awareness campaign from the Department of Paediatrics at the University of Oxford, is now live.

Developed with families, researchers, clinicians and advocacy organisations, the campaign features a series of accessible animated videos exploring neurodevelopmental conditions, genetics and emerging therapeutic approaches.

Shaped by the experiences and questions of parents and carers, the resources aim to improve understanding, support families, and encourage more inclusive conversations around neurodevelopmental conditions.

The videos are now available on their YouTube account:

🧬 Educational animations about genetics, neurodevelopmental conditions, and emerging therapies. This 16-part series was co-created with families, researchers, and advocacy groups to make complex science accessible, clear, and hopeful. Topics include genetic variants, inheritance, genetic testing,...

27/05/2026

Midwives do far more than many people realise.

From clinical care to research, safety, education and genomics, midwifery today extends well beyond the delivery room.

In this episode of Behind the Genes, we explore how midwives are helping shape the future of maternity care and why curiosity, confidence and research are becoming central to the profession.

Listen on your favourite podcast app or on our website: https://ow.ly/hKVl50Z4Mut

15/05/2026

Members of the Participant Panel will be taking to the main stage at our Research Summit, sharing perspectives on the importance of participant voices in genomics research and healthcare.

The Panel will also be present at the Genomics England booth in the gallery area throughout the event. If you’re attending, come and speak to members about their experiences and the role the Panel plays in helping shape Genomics England’s work.

Register now: https://genomicsresearchsummit.co.uk/

13/05/2026

What does a midwife do?

Kate Stanbury, Research Midwife on the Generation Study, joins our latest Genomics 101 episode to explain.

Genomics 101's are our bitesize podcast episodes, all less than 10 minutes long, which explain terms you may come across in genomics.

Listen via your favourite podcast app or on our website: https://ow.ly/NHBM50YYytx

11/05/2026

How do approved researchers securely access data for research?

In this blog, we explore how the Airlock system helps protect participant data while enabling important genomics research.

Learn more about:
• What Airlock is and why it’s important
• How data is securely imported and exported in the Research Environment
• What safeguards are in place to protect participant privacy
• How secure data access supports research into rare conditions and cancer

Read the blog:

‘Airlock’ is a secure gateway used for moving data into and out of the Genomics England Research Environment. In this blog, we talk through the importance…

06/05/2026

Does participating in genomic research really make a difference?

In this clip from Behind the Genes, Participant Panel member Frances reflects on a moment that brought the real-world impact of research into sharp focus - connecting scientific discovery with the people it ultimately affects.

It’s a powerful reminder of why participant involvement matters, and how individual contributions can shape outcomes in ways we don’t always see.

If you missed the episode, it's available on all major podcast platforms, and on our website: https://ow.ly/WRNU50YV698

05/05/2026

"As midwives, we carry the women we have cared for, for the rest of our career. Each person we care for is so special, and we are so grateful for women who trust us to care for them. "

To celebrate International Day of the Midwife, Isy Williams, Community Midwife on the Generation Study, talks about the vital role that midwives play.

Read more in her blog: https://ow.ly/Qv2150YT6On

29/04/2026

Patient and participant voices are playing an increasingly important role in shaping genomic research but what does that look like in practice?

In our latest Behind the Genes episode, we mark 10 years of the Participant Panel and hear directly from the people involved. From influencing research design and data use to contributing to policy discussions, the Panel helps ensure lived experience is embedded from the very beginning.

This episode explores not only the impact of the Panel’s work over the past decade, but also the personal experiences behind it and what meaningful involvement really looks like.

Listen on your favourite podcast app or on our website: https://ow.ly/kVaG50YRzW5